Professor Annmarie Nelson
Marie Curie Professor of Supportive and Palliative Care; Scientific Director, Marie Curie Palliative Care Research Centre; Academic Lead for Public Involvement and Engagement, School of Medicine.
- nelsona9@cardiff.ac.uk
- +44 (0)29 2068 7473
- 8th floor, Neuadd Meirionnydd, University Hospital of Wales, Heath Park, Cardiff, CF14 4YS
Overview
Experience
I hold a personal chair as Marie Curie Professor of Supportive and Palliative Care and am Scientific Director of the Marie Curie Palliative Care Research Centre, established in 2010. The centre has three specified research themes each led by an experienced academic or clinical researcher: Patient and carer experience, Rehabilitation, and VTE and thrombosis with additional projects in all areas of palliative and supportive care, cancer and non- cancer.
My predominant and crosscutting research interest is patient and carer experience of services, interventions, and research. I have worked extensively in palliative care, clinical trials, and with cancer research teams at all stages, from pre-clinical, early diagnosis, supportive and palliative care to the late effects of treatment, following cure, and in different settings, and using multiple methodologies.I have broad research experience and methodological expertise across palliative care and the cancer clinical research spectrum. My research portfolio includes phase 2/3 clinical trials in oncology and supportive care, as well as large-scale surveys, clinical assessment tool development, implementation research, and multi-centre, multi-country qualitative research. I have particular interests in patient experience, interventions, overtreatment, and decision-making, trials methodologies, and the implementation and impact measurement of research outputs into clinical practice.
Current positions:
- Marie Curie Professor of Palliative and Supportive Care
- Scientific Director Marie Curie Research Centre (MCPCRC), Division of Population Medicine, School of Medicine, Cardiff University
- MCPCRC Theme Lead: Patient and carer experience
- Programme Lead Optimised Patient Experience , Wales Cancer Research Centre (WCRC)
- Co-lead Palliative and Supportive Care work package, Primary Care and Emergency centre (PRIME)
Biography
- Marie Curie Professor of Palliative and Supportive Care
- Scientific Director Marie Curie Research Centre (MCPCRC), Division of Population Medicine, School of Medicine, Cardiff University
Qualifications
- PhD: Palliative Care as Progressive Journey: The Interplay of Self, Hope and Death in Nurse-Patient Encounters across Three Care Settings. Department of English, Communication and Philosophy. Health Communication Research Centre. Cardiff University.
- Post Graduate Diploma in Language and Communication Research (Distinction). Department of English, Communication and Philosophy. Cardiff University.
- BA (Hons) English Language and Literature (First Class). Open University.
- Diploma in English Language Studies (Distinction). Open University.
Publications
We are currently unable to retrieve the list of publications. Visit our institutional repository.Teaching
I have been involved with the MSc in Palliative Medicine since 2005. I have supervised more than 50 students with a 100% pass rate, and a high number of merits and distinctions.
Projects
My portfolio includes research into cancer interventions, management, and decision-making, focusing on colorectal, upper GI, lung, prostate, bladder and brain, and non-cancer disease including respiratory conditions, MND, and dementia support.
I have an interest in trials and study methodologies and the ethics of research in different areas (e.g. mining data from social media, interviewing very ill patients at home, trials equipoise). Another major work stream is the modelling and implementation of Public and Patient Involvement across diverse research groups and organisations.
|
Project Name |
Funder |
Funding Dates |
Total Funding |
Role
|
|
Validation of Tie2 as the First Tumour Vascular Response Biomarker for VEGF Inhibitors: VALTIVE1 (VALTIVE1) |
CRUK |
2020-2024 |
£1,003,449.20 |
Co-I Qualitative Lead |
|
BeCovid (Bereavement during Covid-19) |
Economic and Social Research Council: UKRI Ideas to Address COVID-19
|
2020 - 2022 |
£235,000.00 |
Co-I |
|
Wales Cancer Research Centre: Patient Experience/Physiological resilience work packages |
Health and care Research Wales |
2020-2025 |
£665,000.00 |
Work Package lead |
|
Patient Reported Core Outcomes in Brain Tumour Trials: the COBra study |
The Brain Tumour Charity: |
2020-2022 |
£ 152,949.00 |
Co-I |
|
Primary Care and Emergency (PRIME) Centre |
Health and Care Research Wales |
2020 - 2023 |
£ 4,634,746.00 |
Co-I/Palliative Care work package lead |
|
Public perceptions of proton beam therapy |
Tenovus I grants |
2020-2022 Awarded but withdrawn by funder - Covid
|
£29,999.00 |
Co-I |
|
Multidisciplinary team meeting model for Allied Health Professionals |
Tenovus I grants |
2020-2022 Awarded but withdrawn by funder - Covid
|
£30,000.00 |
Co-I |
|
PhD Funding: Developing a screening tool for the late effects of treatment for brain cancers
|
Marie Curie |
2018-2021 |
£65,500.00 |
CI/Principal supervisor |
|
Wales Cancer Research Centre Work Package 9 Palliative and Supportive Care |
Health and Care Research Wales |
2018-2020 |
£330,000.00 |
Co-I/Work package lead |
|
Research Assessment Outcome Measures for Malignant Bowel Obstruction (RAMBO) |
Marie Curie |
2018-2020 |
£218,403.87
|
Co-I Qualitative Lead |
|
Physical activity for people with Brain Tumour in the UK and Bangladesh |
Tenovus |
2018-2020 |
£29,990 |
Co-I |
|
CHRONOS: Comparative Health Research Outcomes of NOvel Surgery in prostate cancer |
Prostate Cancer UK. Research Innovation Awards |
2017-2020 |
£485,966.00 |
Co-I Qualitative Lead |
|
Research development including bereavement services scoping survey |
One Wales Palliative Care programme |
2017-2020 |
£75,000 |
CI |
|
THE EMPOWER PROJECT: EVALUATING A PATIENT DESIGNED TOOL TO REDUCE HARM FROM CANCER ASSOCIATED THROMBOSIS |
Tenovus |
2017-2018 |
£29,000.00 |
Co-I |
|
Commissioned report of summary of Palliative Care minimum data sets Survey of Palliative care support to care homes in England and Wales
|
National Council for Palliative Care/ Public Health England |
2017-2018 |
£23,000 |
CI |
|
Marie Curie Palliative Care Research Centre Infrastructure Funding |
Marie Curie |
2017 - 2022 |
£2,170,956.00 |
Grant holder/Co-I |
|
Scope2: A randomised Phase II/III trial to study radiotherapy dose escalation in patients with oesophageal cancer treated with definitive chemo-radiation with an embedded Phase II trial for patients with a poor early response using positron emission tomography (PET) CTAAC |
CRUK |
2017 - 2019 |
£1,682,836.00 |
Co-I |
|
Attitudes to death and dying Welsh survey |
Velindre End of Life Board |
2017 - 2018 |
£19,745.00 |
CI |
|
Survey of palliative care provision to care homes 2. draft overall national dataset report |
Public Health England |
2016-2017 |
£13,000.00 |
CI |
|
Top up funding for supplementary analysis of PeolcPSP data |
Economic and Social Research Council |
2016-2016 |
£10,000.00 |
CI |
|
Cariad: CARer-ADministration of as-needed sub-cutaneous medication for breakthrough symptoms in home-based dying patients: a UK study (CARiAD) |
NIHR HTA |
2016 - 2019 |
£493,694.00 |
Co-I |
|
Bereavement: Supporting people bereaved through advanced illness: a systematic review of the evidence and development of a core outcome set for bereavement research in palliative care |
Marie Curie |
2016 - 2018 |
£82,000.00 |
Co-I |
|
HIDDen: DVT Hospice Prevalence observational study. Doppler scans of hospice inpatients to establish prevalence of asymptomatic DVT |
NIHR |
2016 - 2018 |
£420,000.00 |
Co-I |
|
Wales Cancer Research Centre Work Package 9 Palliative and Supportive Care |
Health and Care Research Wales |
2015-2018 |
£83,000.00 |
Co-I |
|
Optimising the patient journey with cancer associated Thrombosis (TOPCAT) |
Tenovus |
2015 - 2016 |
£29,940.00 |
Co-I |
|
Palliative and end of life care Priority Setting Partnership (PeolcPSP) |
Marie Curie |
2014 -2016 |
£24,031.00 |
PI |
|
EAGLE: Improving the wellbeing of men by evaluation and addressing the gastrointestinal late effects of radical treatment for prostate cancer |
Prostate Cancer UK |
2014 - 2018 |
£448,064.00 |
Co-CI |
|
Marie Curie Palliative Care Research Centre Infrastructure Funding |
Marie Curie |
2014 - 2017 |
£1,130,000.00 |
Grantholder/Co-I |
|
PELICAN: Patients Experience of living with Cancer Associated Thrombosis |
Velindre |
2014 - 2015 |
£20,000.00 |
Co-I |
|
The challenge pathway: A mixed methods evaluation of an innovative care model for the palliative and end-of-life care of people with dementia (Innovative practice) |
Aneurin Bevan Health Board |
2014 - 2015 |
£30,000.00 |
Co-I |
|
PACT: Development of an intervention to support lung cancer patients and their clinicians |
Velindre Cancer Care |
2013 - 2017 |
£201,614.00 |
CI |
|
Designer: development and part validation of clinical screening tool for late effects of radiotherapy (prostate) |
Tenovus |
2013 - 2014 |
£29,264.00 |
Co-I |
|
AFTER: Free text analysis of palliative care patient satisfaction questionnaires |
Tenovus |
2013 - 2014 |
£30,000.00 |
CI |
|
ROCS (Radiotherapy After Oesophageal Cancer Stenting) Study (ROCS) |
NIHR HTA |
2012 - 2018 |
£2,200,000.00 |
|
|
Canopy A study of the quality of care needs for patient with idiopathic pulmonary fibrosis and their carers, across disease trajectory |
Marie Curie |
2012 - 2014 |
£110,761.00 |
Co-I |
|
ALICAT: A feasibility study to inform the design of a randomised controlled trial to identify the most clinically and cost effect length of Anticoagulation with Low molecular weight heparin In the treatment of Cancer Associated Thrombosis |
NIHR HTA |
2012 - 2014 |
£660,000.00 |
Co-I |
|
RECC Baseline exercise and cachexia study |
Tenovus |
2011 – 2012 |
£30,000.00 |
Co-I |
|
Qualfrag: Qualitative sub study to the Fragmatic clinical trial |
Velindre Charitable Funds |
2011 - 2013 |
£62,516.00 |
Co-CI |
|
Bolero: Open vs robotic surgery bladder |
CRUK |
2011 - 2012 |
£64,000.00 |
Co-I |
|
El Cid: early chest Xray for lung cancer |
NIHR NAEDI |
2011 - |
£400,000.00 |
Co-I |
|
Palliative Care Research Development Group |
WORD |
2010-2013 |
£74,143.00 |
Co-I |
|
FOCUS 3: A study to determine the feasibility of molecular selection of therapy using KRAS, BRAF and topo-1 in patients with metastatic or locally advanced colorectal cancer |
CRUK |
2010-2012 |
£525,000.00 |
Co-I |
|
Marie Curie Palliative Care Research Centre Infrastructure Funding |
Marie Curie |
2010 – 2014 |
£750,000.00 |
Grantholder |
|
Palliative Care Cross-Wales Research Roadshow |
Velindre |
2010 - 2011 |
£20,000.00 |
Co-I |
|
QUALZICE: A QUALitative exploration of the experiences of the participants from the ZICE clinical trial (metastatic breast cancer) receiving intravenous or oral bisphosphonates |
Velindre Charitable Funds |
2008-2010 |
£36,000.00 |
CI |
|
BRITECOG : Validating breathlessness measures for use in patients with lung cancer: a cognitive interview study |
Velindre Charitable Grants |
2008-2010 |
£8,062.00 |
Co-I |
|
NMES: Is neuromuscular electrical stimulation an acceptable and feasible supportive therapy for patients with non-small cell lung cancer receiving palliative chemotherapy? |
NCRI SUPAC |
2008-2010 |
£110,796.00 |
Co-I |
|
Career total |
|
|
£19,977,425.07 |
|
Supervision
Palliative and Supportive Care
Treatment decision support for life limiting conditions
Late effects of cancer treatment
Patient and Public Involvement
Patient and carer experience
Past projects
Current PhD supervision
Pamela Smith. Smoking cessation in deprived communities. 2017-2020.
MPhil supervision. 2013-2016: Dr Gareth Watts. The development and validation of a patient reported outcome measure tool for assessing skin toxicities associated with tyrosine kinase inhibitor administration. Co-supervisor. Pass.
Undergraduate Medicine Intercalated degree 2017: Rhianna Church. Decisions around dying in palliative and end of life care.Supervisor. Awarded 2.1
Recent completed MSc projects 2014-2016
MSc: Dr Michelle Hills. Advance care planning for preferred place of death for children and young people with life-limiting and life-threatening conditions: A qualitative study exploring healthcare professionals’ attitudes and discussions with children, young people and their families.
Supervisor. Awarded distinction.
MSc: Mrs Ceri Davies. Attitudes to Sexuality in Specialist Palliative Care Nurses.Supervisor
Awarded Merit
MSc: Dr Megumi Baba. Comparing knowledge and attitudes to palliative care of paediatric oncologists in the UK and Japan.Supervisor. Awarded Royal Society of Medicine national prize and MSc merit
MSc: Elaine McGleish. Nurse independent prescribing in palliative care. Supervisor
Awarded distinction